Getting involved in kidney research

Resources for children and young people living with kidney disease, and for their families. Most are Canadian, and all are free.

Getting involved in kidney research

The Can-SOLVE CKD Network was built to bring patients and families into kidney research as partners rather than subjects. These modules are open to anyone.

• KidneyPro

  An introduction to how kidney research works in Canada, and how patients can take part meaningfully at every stage.

• KidneyLink

  Connects patients and families with kidney research studies looking for participants and partners.

• Storytelling for Impact

  How to share your own experience of kidney disease in a way that drives improvements in care.

• Patient Partners in Peer Review

  An online module for patients who want to help review research proposals.

Indigenous kidney health

• A Vision for Better Health — Meno Ya Win

  A series for Indigenous people living with chronic kidney disease and their caregivers, covering what CKD is and the treatment choices available.

Organisations

• The Kidney Foundation of Canada

  National patient support, education and financial assistance programs, with offices in every province.

• Can-SOLVE CKD Network

  A national research network built around patient partnership, and the source of most of the modules above.

If your family has found a resource that belongs on this page, or if something here is out of date, please tell us at contact@capneph.ca.