CAPN considers advocacy part of the professional responsibility of its members. Over the years we have worked with partner organisations to build advocacy toolkits and skills aimed at improving our patients’ lives. Current initiatives concern medication access and formulary fairness for paediatric nephrology patients.
Other issues arise that need our voice. If there is something, from a patient or a health care provider perspective, that CAPN should be speaking about, get in touch at contact@capneph.ca. An advocacy request form is available to set out the issue.
Publications
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Medication access is not equitable for Canadian children
An opinion editorial from CAPN on inequity in access to medications for children.
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COVID-19 guidance for children with kidney disease
Four open-access papers CAPN published during the pandemic, so that every Canadian centre had paediatric guidance rather than adapting adult protocols on the fly.
The four papers
Management of paediatric kidney transplant patients during the COVID-19 pandemic
Teoh CW, Gaudreault-Tremblay MM, Blydt-Hansen TD, et al, on behalf of the CST Paediatric Group. Can J Kidney Health Dis 2020;7:2054358120967845.Management of Canadian paediatric patients with glomerular diseases during the COVID-19 pandemic
Robinson C, Ruhl M, Kirpalani A, Alabbas A, Noone D, Teoh CW, Langlois V, Phan V, Lemaire M, Chanchlani R. Can J Kidney Health Dis 2020;7:2054358120970713.Guidelines for management of acute kidney injury in children
Alabbas A, Kirpalani A, Morgan C, et al, Chanchlani R, Lemaire M. Can J Kidney Health Dis 2021;8:2054358121990135.Home and in-center dialysis guidance
Alabbas A, Harvey E, Kirpalani A, Teoh CW, et al, Lemaire M, Chanchlani R. Can J Kidney Health Dis 2021;8:20543581211053458. -
Improving paediatric medications: a prescription for Canadian children and youth
A white paper on paediatric medication equity from the Canadian Paediatric Society and the Goodman Family Centre Pediatric Formulation Centre, developed with paediatric stakeholders including CAPN. It sets out an approach to equitable access to medications for children in Canada.
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Hypertension Canada’s 2017 guidelines for paediatric hypertension
Dionne JM, Harris KC, Benoit G, Feber J, Poirier L, Cloutier L, Nakhla M, Rabi D, Daskalopoulou SS, Fournier A, for the Hypertension Canada Guideline Committee. Can J Cardiol 2017;33:577–585.
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AAP clinical practice guideline on high blood pressure in children and adolescents
Flynn JT, Kaelber DC, Baker-Smith CM, et al, for the Subcommittee on Screening and Management of High Blood Pressure in Children. Pediatrics 2017;140(3):e20171904.
Statements
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Statement from CAPN on racism
Issued by the executive in June 2020, acknowledging anti-Black racism and racism against Indigenous peoples in Canada, and CAPN’s responsibility to respond to it.
Advocacy resources
From the CAPN advocacy workshop, Baltimore, May 2016.
- Workshop slide set
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Follow-up advocacy action plan
A template for turning an advocacy issue into a plan.
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Best Pharmaceuticals for Children Act
Coalition one-page briefing.
- AAP statement on off-label use
- Drug research and treatment policy
The resources above date from 2016 and are kept for reference. Members working on a current advocacy issue are welcome to contact the executive.